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PROM Development in Lymphoedema



The National Lymphoedema team will share their journey to develop and validate new PROMs for their patient population. The team started by testing some of the existing tools and soon realised they did not provide the level of sensitivity and range of issues that mattered to their patients. Working collaboratively with their service users they have embarked on a two year long PROM development journey, which is nearing completion as they get ready to submit their work for publication.


Melanie Thomas, National Clinical Lead for Lymphoedema

Marie Gabe-Walters, National Research, and Innovation Lymphoedema Specialist